Overview of the NIH All of Us Research Project and Innovative Ways for Community Engagement

Dr. Blizinsky, policy director for the All of Us Research Program, delivered a plenary address at the OHRP RCF in Greenville, NC in September 2018, co-sponsored with East Carolina University. ECU has posted this video of her presentation for public distribution. In her presentation, Dr. Blizinsky discusses the All of Us program's innovative engagement strategies. She also discusses the creation of a data enclave, the data security measures to protect it, and the program's intention to make the data widely available. All of these goals present unique ethical challenges, which Dr. Blizinsky addresses with emphasis on the informed consent process and participants' autonomous decision-making.