The Department of Justice has long focused on the need for agencies to work proactively to post information online without waiting for individual requests to be received.
Please answer the following questions to describe the steps your agency has taken to increase the amount of material that is available on your agency websites. In addition to the questions below, you should also describe any additional steps taken by your agency to make and improve proactive disclosures of information.
1. Provide examples of any material that your agency has proactively disclosed during the past reporting year, including records that have been requested and released three or more times in accordance with 5 U.S.C. § 552(a)(2)(D). Please include links to these materials as well.
COVID-19 Proactive Disclosures
HHS worked closely with its federal partners and state, local, tribal, and territorial governments, public health officials, health care providers, researchers, private sector organizations and the public to execute a whole-of-America response to the COVID-19 pandemic to protect the health and safety of the American people. HHS Digital Communications led the Federal Government response with CDC.gov/coronavirus becoming the top federal government website for many months, getting more than 2 billion page views. HHS Digital Communications coordinated response across all key department websites and with the Federal Web Council, directing a coordinated Federal Communications Response with the Department of Homeland Security through the Emergency Response for Communications.
HHS partnered with Army to proactively post contracts related to Operation Warp Speed. The contracts can be found in the HHS Reading Room, under OWS Proactive Releases - https://www.hhs.gov/foia/electronic-reading-room/index.html
HHS has also posted additional COVID related contracts - https://www.hhs.gov/coronavirus/contracts/index.html
HHS ASPA Digital Team worked extensively with HRSA to publish CARES Act Provider Relief Funding Data - https://www.hhs.gov/coronavirus/cares-act-provider-relief-fund/data/index.html
Some of the actions HRSA took to provide information about COVID-19 https://www.hrsa.gov/coronavirus that includes:
- Standing up a website for the Uninsured Program
- Building webpages for HRSA's overall COVID response
- Posting updated health center testing data every week for months
- Continuously providing proactive information on social media
- Posting multiple press announcements on HRSA program awards for COVID-19
CDC posted COVID records requested without regard to the rule of three. We have also posted FOIA Request Logs https://www.cdc.gov/od/foia/reading/index.htm
CMS proactively posts their FOIA logs on a monthly basis - https://www.cms.gov/Regulations-and-Guidance/Legislation/FOIA/rdgroom
FDA has continued its commitment to proactive disclosure during the reporting period, particularly with regard to the COVID-19 pandemic. For example, FDA has proactively posted Emergency Use Authorization records for several COVID-19 vaccines and therapies (https://www.fda.gov/emergency-preparedness-and-response/mcm-legal-regulatory-and-policy-framework/emergency-use-authorization). In addition, please see:
- ORA Reading Room Inspection Records - https://www.fda.gov/about-fda/office-regulatory-affairs/ora-foia-electronic-reading-room
- CDER Reading Room Frequently Requested - https://www.fda.gov/drugs/cder-foia-electronic-reading-room/frequently-requested-or-proactively-posted-drug-specific-and-other-records
- Warning Letters - https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/compliance-actions-and-activities/warning-letters
- CBER COVID Related Information - https://www.fda.gov/vaccines-blood-biologics/industry-biologics/coronavirus-covid-19-cber-regulated-biologics
- Medical Device Adverse Event Reports - https://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfmaude/search.cfm
- CDRH Device Releasable 510(k) database: https://www.fda.gov/medical-devices/510k-clearances/search-releasable-510k-database
- Animal Drug Approvals - https://www.fda.gov/animal-veterinary/approved-animal-drug-products-green-book/recent-animal-drug-approvals
- Tobacco Compliance Check Inspections - https://www.accessdata.fda.gov/scripts/oce/inspections/oce_insp_searching.cfm
IHS Posted 2020 Urban Indian Organization Contract Amounts to the IHS eFOIA Reading Room located on the IHS website at: https://www.ihs.gov/FOIA/readingroom/. This step was taken after it was noted by FOIA staff that this was an annual request submitted at the beginning of each Fiscal year (tracking back to the previous 5 FYs). Publication created a more efficient and effective method for responding to this annual request. As other similar annual/recurring requests are identified, they will also be evaluated for eFOIA Reading Room publication.
HRSA continues to post the Universal Data Set (UDS) report, which contains the data reported by over 1,300 HRSA-funded Federally Qualified Community Health Centers (FQHCs). Every FQHC must file an annual UDS report made up of 14 highly detailed tables with approximately 20,000 data points. This past year provided clear evidence of the efficiency that can result from such disclosures. The link to the Reading Room is https://www.hrsa.gov/foia/electronic-reading.html
The Reading Room page also lists the HTML links for several of HRSA's most requested databases and programs. These include the HRSA Data Warehouse, the National Practitioner Data Bank, the Office of Pharmacy Affairs 340B Database, and the National Vaccine Injury Compensation Program Data and Statistics. In addition, it contains links to a wide assortment of other related databases, health center policy statements, and announcements of HRSA funding opportunities.
The National Institutes of Health reported the following proactive disclosures:
CSR:
- We recently completed an evaluation of the scope of scientific review groups (ENQUIRE 2019); the process and results were posted and discoverable by search and by browsing via multiple paths.
- CSR Advisory Council meets in September and March of each year. The attendees and council members, agenda, meeting minutes, presentations, reports, and links to the videocast are posted on our Advisory Council web page. In addition to posting the link to the full videocast, the meeting minutes have direct links to specific points in the video cast in order to make it easier for the public to navigate to discussions of interest to them (e.g. Sept 2020 CSRAC Meeting Minutes).
- Initiatives undertaken by CSR are also publicized through the Review Matters blog. The posts usually contain highlights related to a CSR initiative as well as links to more detailed reports. For example, we posted a blog on changes made to our Early Career Reviewer Program (Review Matters 15 Nov 2019) and the post included a link to a detailed report about the data and input considered.
- The information most often sought by the public is rosters for scientific review groups. We make this information discoverable through the search on our web site and by browsing via multiple avenues. Rosters are posted on study section description pages (e.g., Arthritis, Connective Tissue and Skin Study Section) and under Review Panels & Dates, where the first click takes a user to a roster search page (Find Meeting Rosters). Both "Study Sections" and "Review Panels & Dates" are top level menu items that are present on the landing page and on every page as one navigates through our web site.
FIC:
- News and feature articles about Fogarty's programs and grantee successes, scientific publications etc.: https://www.fic.nih.gov/News/Pages/News.aspx
- Weekly funding newsletter including items of interest to global health researchers: http://www.fic.nih.gov/Funding/News/
- Commentary and publications by Fogarty Director: http://www.fic.nih.gov/About/Pages/director.aspx
- Newly funded grants and awards: http://www.fic.nih.gov/Grants/Search/Pages/search-grants.aspx
- COVID-19 resources for global health researchers: https://www.fic.nih.gov/ResearchTopics/Pages/infectiousdiseases-coronavirus-cov.aspx
NCATS:
- "Repurposing Off-Patent Drugs: Research & Regulatory Challenges": https://videocast.nih.gov/watch=35412
The following information is updated frequently:
- Annual and Biennial reports, which can be found on the right rail and bottom at https://ncats.nih.gov/about/center
- A Translational Approach to Addressing COVID-19: https://ncats.nih.gov/covid19-translational-approach
- NCATS' Role in the NIH HEAL Initiative: https://ncats.nih.gov/heal
- Translational Science Education and Training: https://ncats.nih.gov/training-education
- Funded activities under the NCATS Clinical and Translational Science Awards (CTSA) Program: https://ncats.nih.gov/files/CTSA_Funding_Information_FY19_508_v2.pdf
- NCATS Strategic Plan: https://ncats.nih.gov/strategicplan
- NCATS Toolkit for Patient-Focused Therapy Development: https://ncats.nih.gov/toolkit
- Pre-Clinical Research Toolbox: https://ncats.nih.gov/expertise/preclinical
- Clinical Research Toolbox: https://ncats.nih.gov/expertise/clinical
- Rare Diseases Community Resources: https://ncats.nih.gov/engagement/rare-diseases-community-resources
- Assay Guidance Manual: https://ncats.nih.gov/expertise/preclinical/agm, including
- AGMTraining Workshops: https://ncats.nih.gov/expertise/preclinical/agm/trainingNCATS Day2019: https://ncats.nih.gov/news/events/ncats-day-2019
- NCATSSMART IRBReliance Platform information: https://ncats.nih.gov/expertise/clinical/smartirb
- NCATSAdvisory Council/Cures Acceleration Network Review Board meetingagendas, minutes and videocasts: https://ncats.nih.gov/advisory/council
- Concept Clearances: https://ncats.nih.gov/advisory/concepts
- NCATSAdvisory Council Subcommittees and Working Groups and reports: https://ncats.nih.gov/advisory/council/subcomm
- NCATSExpertise and Resources: https://ncats.nih.gov/expertise
- Licensing opportunities: https://ncats.nih.gov/alliances/licensing
- Innovation at NCATS: https://ncats.nih.gov/files/NCATS_Innovation_Patents_2018_2020.pdf
- NCATSFunding & Notices: https://ncats.nih.gov/funding
- NCATSReleases and Announcements: https://ncats.nih.gov/news/releases
- Events: https://ncats.nih.gov/events
- NCATSFeature Stories and News Briefs: https://ncats.nih.gov/pubs/features
- Scientific Publications: https://ncats.nih.gov/pubs/science
- Forms and Model agreements: http://ncats.nih.gov/alliances/forms
- Genetic and Rare Diseases (GARD) Information Center: https://rarediseases.info.nih.gov
- NCATSEarly Translation Branch (ETB)resources: https://ncats.nih.gov/ncgc/capabilities/resources
- Budget and Congressional Justification: https://ncats.nih.gov/about/center/budget
- Comment Policy: https://ncats.nih.gov/comments
- Job Opportunities: https://ncats.nih.gov/jobs
NCCIH:
- We do have an "In the News" portion of our website (https://www.nccih.nih.gov/news) where we post information on emerging topic areas that are getting covered in the media and another place where we link to FDA alerts and advisories (https://www.nccih.nih.gov/news/alerts), but all of this is generally publicly available information.
NCI:
- Information to those with cancer and coronavirus: https://www.cancer.gov/about-cancer/coronavirus/coronavirus-cancer-patient-information?cid=feature_aboutcancer_cis
- Updated information about Cancer Statistics: https://www.cancer.gov/about-cancer/understanding/statistics
- NCI Budget Fact Book Archive: https://www.cancer.gov/about-nci/budget/fact-book/archive
- Cancer Incidence Data on data.gov: https://catalog.data.gov/dataset/cancer-incidence-surveillance-epidemiology-and-end-results-seer-registries-limited-use
NEI:
- We posted minutes and videocast links for our National Advisory Eye Council meetings at https://www.nei.nih.gov/about/advisory-committees/national-advisory-eye-council-naec/national-advisory-eye-council-charter/national-advisory-eye-council-naec-meetings.
NHLBI:
- https://www.nhlbi.nih.gov/news/2019/scientists-find-new-approach-shows-promise-treating-cystic-fibrosis
- https://www.nhlbi.nih.gov/news/2019/surgery-no-better-medication-preventing-serious-complications-atrial-fibrillation
- https://www.nhlbi.nih.gov/news/2019/light-physical-activity-linked-lower-risk-heart-disease-older-women
- https://www.nhlbi.nih.gov/news/2019/large-portion-patients-mild-persistent-asthma-and-low-sputum-eosinophils-respond-equally
- https://www.nhlbi.nih.gov/news/2019/study-links-irregular-sleep-patterns-metabolic-disorders
- https://www.nhlbi.nih.gov/news/2019/study-funded-nih-supports-optimal-threshold-diagnosing-copd
- https://www.nhlbi.nih.gov/news/2019/blood-transfusions-critically-ill-children-fresh-vs-older-red-blood-cells
- https://www.nhlbi.nih.gov/news/2019/researchers-identify-genetic-variations-linked-oxygen-drops-during-sleep
- https://www.nhlbi.nih.gov/news/2019/pediatric-drug-trial-finds-benefit-teens-heart-defect
- How COVID-19 Affects Your Blood - https://youtu.be/ZL1z3Uju-I0
- How COVID-19 Affects Your Lungs - https://youtu.be/ZL1z3Uju-I0
- How COVID-19 Affects Your Heart - https://youtu.be/QAgSsHIPYYQ
NIA:
- Alzheimer's Bypass Budget Proposal - https://www.nia.nih.gov/about/bypass-budget-proposal-archive
- NIA Budget and Testimony - https://www.nia.nih.gov/about/budget
- Ongoing Alzheimer's and Dementias Clinical Trials - https://www.nia.nih.gov/research/ongoing-AD-trials
- NIA Funding Lines - https://www.nia.nih.gov/research/grants-funding/nia-funding-line-policy-fy-2020
- Inside NIA blog - https://www.nia.nih.gov/research/blog
- AD+ADRD Research Implementation Milestones - https://www.nia.nih.gov/research/milestones
NIAAA:
- An example of materials that are proactively disclosed is the proceedings of the National Advisory Council on Alcohol Abuse and Alcoholism, an advisory body to the NIAAA Director. Available at http://www.niaaa.nih.gov/about-niaaa/advisory-council, this information includes the Council meeting agendas, the NIAAA Director's reports and presentation to the Council, and minutes from Council meetings which are open to the public. These meetings occur three times per year. NIAAA also discloses information about the Council's approval of concepts for new initiatives. This information is available at https://www.niaaa.nih.gov/funding-opportunities/concept-clearance#approved-concepts. Information about active funding opportunities and policy information about the submission of grant proposals is available at https://www.niaaa.nih.gov/funding-opportunities.
NIBIB:
- NIBIB-funded science highlights: http://www.nibib.nih.gov/news-events/newsroom
- Funding opportunities: http://www.nibib.nih.gov/research-funding#quicktabs-funding_tabs=1
- National Advisory Council for Biomedical Imaging and Bioengineering meeting agendas and meeting minutes: http://www.nibib.nih.gov/about-nibib/advisory-council
- NIBIB Congressional Justification: http://www.nibib.nih.gov/about-nibib/budget
- Results of the annual Design by Biomedical Undergraduate Teams Challenge: https://www.nibib.nih.gov/training-careers/undergraduate-graduate/design-biomedical-undergraduateteams-debut-challenge
- Published results of workshop supported in part by NIBIB: https://www.nibib.nih.gov/news-events/newsroom/national-experts-chart-roadmap-ai-medical-imaging
Also, in 2020 in response to the COVID-19 pandemic NIBIB added a COVID-19 section to its website with information about funding opportunities for researchers and industry, data related to specific projects, and summaries of research projects. See links below.
- NIBIB COVID-19 page – https://www.nibib.nih.gov/covid-19
- NIBIB RADx Tech/ATP programs - https://www.nibib.nih.gov/covid-19/radx-tech-program
- NIBIB RADx Tech/ATP programs dashboard - https://www.nibib.nih.gov/covid-19/radx-tech-program/radx-tech-dashboard
NIDA:
- PATH Study website for the general public and participants: https://pathstudyinfo.nih.gov/UI/HomeMobile.aspx
- PATH Study "contact us" page for questions, comments, media inquiries, requests: https://pathstudyinfo.nih.gov/UI/RequestForm.aspx
- PATH Study documentation: o https://doi.org/10.3886/Series606 see for publications, studies, and variables
- Posted at the National Institute on Drug Abuse (NIDA) website: https://www.drugabuse.gov/research/nida-research-programs-activities/population-assessment-tobacco-health-path-study
- Posted at the Food and Drug Administration (FDA) website: https://www.fda.gov/tobacco-products/research/fda-and-nih-study-population-assessment-tobacco-and-health
- Posted at the Food and Drug Administration (FDA) Center for Tobacco Products (CTP) website: https://www.fda.gov/TobaccoProducts/PublicHealthScienceResearch/Research/ucm404900.htm
- PATH Study data and documentation:
- The top-level series page: https://doi.org/10.3886/Series606;
- Restricted Use Files (RUFs): https://doi.org/10.3886/ICPSR36231
- Public Use Files (PUFs): https://doi.org/10.3886/ICPSR36498
- Biomarker Restricted-Use Files: https://doi.org/10.3886/ICPSR36840
- Special Collection Restricted Use Files (RUFs): https://doi.org/10.3886/ICPSR37519
- Special Collection Public Use Files (PUFs): https://doi.org/10.3886/ICPSR37786
- Biospecimen access program: http://www.icpsr.umich.edu/icpsrweb/content/NAHDAP/pathstudy-biospec-index.html
- Publications: https://www.icpsr.umich.edu/web/NAHDAP/series/606/publications
- PATH Study Data User Forum: https://pathstudyforum.icpsr.umich.edu/
- Questions about the PATH study can be sent here: PATHDataUserQuestions@Westat.com
NIEHS:
- In order to be proactive about COVID-19 responses, NIEHS has stood up a public index of COVID-19 related public resources at https://www.niehs.nih.gov/research/programs/coronavirus/index.cfm
- NTP publishes the Report on Carcinogens (RoC), a congressionally mandated, science-based, public health document that the NTP prepared for the HHS Secretary. See https://ntp.niehs.nih.gov/pubhealth/roc/index.html
- Reports & Abstracts on Test Articles - NTP has the full text of hundreds of reports and abstracts available on test articles it has studied, and adds more regularly as they are finalized. See http://ntp.niehs.nih.gov/results/pubs/index.html
- Alternate Test Methods - NICEATM publishes on alternate test methods. See http://ntp.niehs.nih.gov/pubhealth/evalatm/publications-and-presentations/index.html
- NTP Monographs - NTP conducts literature-based evaluations that assess evidence on substances in our environment that may cause adverse health effects. See https://ntp.niehs.nih.gov/pubhealth/hat/index.html
- Databases & Searches - NTP makes several databases and online searches available at no cost. See http://ntp.niehs.nih.gov/results/dbsearch/index.html
- Pathology Tables for Peer Review - To inform the public in a timely manner, NTP makes available information on the pathology, body weight changes and survival of completed 2-year studies as soon as possible after the appropriate reviews of the data have been made. See http://ntp.niehs.nih.gov/results/path/index.html
- Summaries/Associations - NTP has put together sets of summaries and associations based on frequently asked questions by the public. See http://ntp.niehs.nih.gov/results/summaries/index.html
- Initiatives - NTP initiatives include Toxicology in the 21st Century (Tox21). See https://ntp.niehs.nih.gov/results/tox21/index.html
NIMH:
- Reports, press releases, podcasts, and webinars on current research findings and meetings, as well as about NIMH scientists and grantees earning various awards (main page): (http://www.nimh.nih.gov/news/science-news/index.shtml)
Current NIMH-funded research findings, such as:
- NIH-funded Study Sheds Light on Abnormal Neural Function in Rare Genetic Disorder: https://www.nimh.nih.gov/news/science-news/2020/nih-funded-study-sheds-light-on-abnormal-neural-function-in-rare-genetic-disorder.shtml
- Study Shows Highly Reproducible Sex Differences in Aspects of Human Brain Anatomy: https://www.nimh.nih.gov/news/science-news/2020/study-shows-highly-reproducible-sex-differences-in-aspects-of-human-brain-anatomy.shtml Outdoor Light Linked with Teens' Sleep and Mental Health: https://www.nimh.nih.gov/news/science-news/2020/outdoor-light-linked-with-teens-sleep-and-mental-health.shtml
- Brain Cells Can Harbor and Spread HIV Virus to the Body: https://www.nimh.nih.gov/news/science-news/2020/brain-cells-can-harbor-and-spread-hiv-virus-to-the-body.shtml
- Emergency Drug Overdose Visits Associated with Increased Risk for Later Suicide: https://www.nimh.nih.gov/news/science-news/2020/emergency-drug-overdose-visits-associated-with-increased-risk-for-later-suicide.shtml
- Infant Temperament Predicts Personality More Than 20 Years Later: https://www.nimh.nih.gov/news/science-news/2020/infant-temperament-predicts-personality-more-than-20-years-later.shtml
- Fast-Fail Trial Shows New Approach to Identifying Brain Targets for Clinical Treatments: https://www.nimh.nih.gov/news/science-news/2020/fast-fail-trial-shows-new-approach-to-identifying-brain-targets-for-clinical-treatments.shtml
- Neural Signature Identifies People Likely to Respond to Antidepressant Medication: https://www.nimh.nih.gov/news/science-news/2020/neural-signature-identifies-people-likely-to-respond-to-antidepressant-medication.shtml
Institute Updates and Research Highlights on important research topics such as:
- NIMH Scientific Director Susan Amara Selected as AAAS President-Elect: https://www.nimh.nih.gov/news/science-news/2020/nimh-scientific-director-susan-amara-selected-as-aaas-president-elect.shtml
- Supporting Mental Health During the COVID-19 Pandemic: https://www.nimh.nih.gov/news/science-news/2020/supporting-mental-health-during-the-covid-19-pandemic.shtml
- Digital Mental Health: Innovating in a Time of High Anxiety: https://www.nimh.nih.gov/news/science-news/2020/digital-mental-health-innovating-in-a-time-of-high-anxiety.shtml
- New NIMH Strategic Plan Paves the Way for Advances in Mental Health Research: https://www.nimh.nih.gov/news/science-news/2020/new-nimh-strategic-plan-paves-the-way-for-advances-in-mental-health-research.shtml
- NIMH Leadership Describes Suicide Prevention Research Priorities: https://www.nimh.nih.gov/news/science-news/2020/nimh-leadership-describes-suicide-prevention-research-priorities.shtml
- NIMH's Carlos Zarate Jr., M.D., Elected to National Academy of Medicine: https://www.nimh.nih.gov/news/science-news/2020/nimhs-carlos-zarate-jr-md-elected-to-national-academy-of-medicine.shtml
- Using Mobile Technology to Improve Care for Teens with Depression: https://www.nimh.nih.gov/news/research-highlights/2020/using-mobile-technology-to-improve-care-for-teens-with-depression.shtml
- Testing and Refining Biomarkers to Support Intervention Research for Children with Autism: https://www.nimh.nih.gov/news/research-highlights/2020/testing-and-refining-biomarkers-to-support-intervention-research-for-children-with-autism.shtml
- NIMH Awards Funding for Research on Preventing Firearm Injury and Mortality: https://www.nimh.nih.gov/news/research-highlights/2020/nimh-awards-funding-for-research-on-preventing-firearm-injury-and-mortality.shtml
- Brief Suicide Prevention Interventions in Acute Care Settings May Reduce Subsequent Suicide Attempts: https://www.nimh.nih.gov/news/research-highlights/2020/brief-suicide-prevention-interventions-in-acute-care-settings-may-reduce-subsequent-suicide-attempts.shtml
- NIMH Part of Collaborative Effort to Advance Early Intervention for Individuals at Risk of Developing Schizophrenia: https://www.nimh.nih.gov/news/research-highlights/2020/nimh-part-of-collaborative-effort-to-advance-early-intervention-for-individuals-at-risk-of-developing-schizophrenia.shtml
- Differences in Suicide Risk Among Subgroups of Sexual and Gender Minority College Students: https://www.nimh.nih.gov/news/research-highlights/2020/differences-in-suicide-risk-among-subgroups-of-sexual-and-gender-minority-college-students.shtml
- Genetic Variations Highlight the Importance of Metabolic Processes in Anorexia: https://www.nimh.nih.gov/news/research-highlights/2020/genetic-variations-highlight-the-importance-of-metabolic-processes-in-anorexia.shtml
- Supporting the Development of Early Autism Screening Tools: https://www.nimh.nih.gov/news/research-highlights/2020/supporting-the-development-of-early-autism-screening-tools.shtml
- Brain Processes Underlying the Extinction and Reactivation of Fear Memories: https://www.nimh.nih.gov/news/research-highlights/2020/brain-processes-underlying-the-extinction-and-reactivation-of-fear-memories.shtml
- Large-Scale Genetics Study Sheds Light on Developmental Origins of Autism: https://www.nimh.nih.gov/news/research-highlights/2020/large-scale-genetics-study-sheds-light-on-developmental-origins-of-autism.shtml
- Transforming Mental Health Care Through ALACRITY: https://www.nimh.nih.gov/news/research-highlights/2020/transforming-mental-health-care-through-alacrity.shtml
- Combined Electroconvulsive Therapy and Venlafaxine a Well-Tolerated Depression Treatment for Older Adults: https://www.nimh.nih.gov/news/research-highlights/2020/combined-electroconvulsive-therapy-and-venlafaxine-a-well-tolerated-depression-treatment-for-older-adults.shtml
- Developing Rapid, Accurate Assessment of Mental Disorders, Suicide Risk in Youth: https://www.nimh.nih.gov/news/research-highlights/2020/developing-rapid-accurate-assessment-of-mental-disorders-suicide-risk-in-youth.shtml
- Using Technology to Help Predict Binge and Purge Episodes in People with Eating Disorders: https://www.nimh.nih.gov/news/research-highlights/2020/using-technology-to-help-predict-binge-and-purge-episodes-in-people-with-eating-disorders.shtml
- Identifying Practices for Reducing Incarceration of Those with Mental Illnesses—A Study of "Stepping Up": https://www.nimh.nih.gov/news/research-highlights/2020/identifying-practices-for-reducing-incarceration-of-those-with-mental-illnesses-a-study-of-stepping-up.shtml
- Meeting summaries describing workshops and conferences hosted by NIMH or our grantees: https://www.nimh.nih.gov/news/events/index.shtml
- Consumer health information and publications (brochures, fact sheets, and eBooks) on many different mental disorders and topics available in English and Spanish: http://www.nimh.nih.gov/health/publications/index.shtml
Using social media, NIMH pushed out a variety of messages on:
- NIMH enterprise Twitter: 1.17 M followers
- NIMH Director Twitter: 10,800 followers
- Facebook: 402,000 followers
- LinkedIn: 165,700 followers
- Instagram: 15,000 followers (launched January 2020)
- IACC Autism Twitter feed: 10,900 followers
- NIMH_ RDoC: 3,800 followers
- NIMH YouTube: 20,000 subscribers
NINDS:
- Mucopolysaccharidoses: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Mucopolysaccharidoses-Fact-Sheet
- Motor Neuron Diseases: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Motor-Neuron-Diseases-Fact-Sheet
- Neurological Consequences of HIV and AIDS: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Neurological-Complications-AIDS-Fact-Sheet
- Inflammatory Myopathies: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Inflammatory-Myopathies-Fact-Sheet
- Carpal Tunnel Syndrome: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Carpal-Tunnel-Syndrome-Fact-Sheet
- Stroke: Hope Through Research: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Stroke-Hope-Through-Research
- Traumatic Brain Injury: Hope Through Research: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Traumatic-Brain-Injury-Hope-Through
- Myasthenia Gravis: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Myasthenia-Gravis-Fact-Sheet
- Parkinson's Disease: Hope through Research: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Parkinsons-Disease-Hope-Through-Research
- Low Back Pain: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Low-Back-Pain-Fact-Sheet
- Tuberous Sclerosis: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Tuberous-Sclerosis-Fact-Sheet
- Hydrocephalus: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Hydrocephalus-Fact-Sheet
- Post-Stroke Rehabilitation: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Post-Stroke-Rehabilitation-Fact-Sheet
- Neurofibromatosis: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Neurofibromatosis-Fact-Sheet
- Huntington's Disease: Hope Through Research: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Huntingtons-Disease-Hope-Through
- Multiple Sclerosis: Hope Through Research: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Multiple-Sclerosis-Hope-Through-Research
- Brain and Spinal Cord Tumors: Hope Through Research: https://catalog.ninds.nih.gov/ninds/facet/Health-Topics/term/Brain-Tumors
- Leukodystrophy https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Leukodystrophy-Fact-Sheet
NINR:
- NINR recently added a "Preventing Infections in Multiple Healthcare Settings" https://www.ninr.nih.gov/newsandinformation/newsandnotes/infection-control special feature to its website that highlights research on health care-associated infections (HAIs). The new page illustrates how research led by nurse scientists on infection control has helped provide a foundation of evidence and guided best practices in multiple clinical settings.
- NINR has also developed a webpage showcasing the Omics Nursing Science & Education Network (ONSEN) https://www.ninr.nih.gov/researchandfunding/onsen The purpose of ONSEN is to assist those interested in including omics in their program of nursing research. The creation of this resource network was recommended by leaders from the nurse scientist community who wanted to enable collaboration, mentoring, and access to training opportunities.
2. Beyond posting new material, is your agency taking steps to make the posted information more useful to the public, especially to the community of individuals who regularly access your agency's website?
Yes.
3. If yes, please provide examples of such improvements. In particular, please describe steps your agency is taking to post information in open, machine-readable, and machine-actionable formats, to the extent feasible. If not posting in open formats, please explain why and note any challenges.
- HHS began using Pagefreezer, which allows the public to see past iterations of HHS web content.
- HHS uses social media to include more than 800 social media sites.
- The FDA Commissioner writes a blog on high visibility issues (https://blogs.fda.gov/fdavoice/)
- FDA posts high priority public information on the homepage of the agency website, https://www.fda.gov/default.htm.
- The FDA provides the public with the ability to subscribe to RSS feed notices or sign up to receive automated emails for updates to over 100 different web pages/databases (see http://www.fda.gov/AboutFDA/ContactFDA/StayInformed/GetEmailUpdates/default.htm).
- NIH has ensured that cross-agency review platform generates 508-compliant content.
4. Optional -- Please describe:
Best practices used to improve proactive disclosures
Any challenges your agency faces in this area
- Introduction: Agency Chief Freedom of Information Act Officer
- Section I: Steps Taken to Apply the Presumption of Openness
- Section II: Steps Taken to Ensure that Your Agency Has an Effective System in Place for Responding to Requests
- Section III: Steps Taken to Increase Proactive Disclosures
- Section IV: Steps Taken to Greater Utilize Technology
- Section V: Steps Taken to Improve Timeliness in Responding to Requests and Reducing Backlogs
- Success Stories